As I sit in my hospital bed watching the squiggly lines on the heart monitor go up and down I can't help but think of you. I have to tell you this entry is harder than the first one I did on this blog because I have finally realized my heart and lung condition can not be ignored, it won't let me ignore it any longer... You are almost four and I am sure you won't remember everything that has been going on so I'm going to tell you as best I can...
Thursday (Feb 2, 2012) I put you to bed around 8 pm as I normally do. I went into Grandpa's study where Grandma and Grandpa were laughing and carrying on about Grandma trying to exercise down on the floor and lifting her legs. Grandpa said I should get on the floor and show her how it is done... So I did a few leg lifts and went back to my room. I layed on my stomach on my bed and started to text friends... I coughed and up came blood... I preceded to cough blood up for a good 40 min. Your grandpa and grandma took me to the ER (this had never happened before and we were all a bit scared). They did a lot of tests and did see a patch in my right lung that was "cloudy" which is medicine term for fluid. They diagnosed me with pneumonia and started me on IV antibiotics. by Saturday evening I had been on antibiotics for a day and a half. Sunday morning the doctors took me off the antibiotics saying that I wasn't showing any sign of infection. And that they want to take a camera down into my lungs to see if they can find the source of the bleeding, and try to stop it by burning it. SO, this is where I sit, waiting for this precedure... it's Super Bowl Sunday and I can't be with family or friends because I am here... I am almost okay with that.. I'd rather know I am getting the best care I can so I can be at home with you. I'm scared though, that my lungs are getting worse.. that on top of congestive heart failure I will have to deal with coughing up blood from time to time (because apparently that is something that happens with the lung condition that I have.) I really don't want to have my conditions get worse because I don't want to leave you sooner than I should have to.
I am honestly so so scared that I won't be able to see you grow up. I worry that if I am not here to watch you grow up you may never know my desires and prayers for your life. I am so scared... I can not leave you before you are old enough to be on your own.. it is just not an option.
Several days later...
They refused to do the procedure and sent me home saying I was too well to do the scope thing into my lungs. I hope that I can go home and back to normal life and don't have to come back to this hospital again...
Later in February I was having chest pains and coughing up blood from time to time.. I was having a worse time breathing and contacted Dr. Daniels about this. He told me to go to the hospital... So they did a direct admit (3rd time in two months that I have been here....I don't know how much longer I can do this...) I am frustrated and upset. I had to wish you goodbye last night because tonight Grandpa, Grandma, You and I were supposed to be going to VA for Natalie's baby shower. I had to make the very very hard decision that I should not go on the long car ride because it may make my conditions worse. SO I wished you and Grandpa and Grandma goodbye and told you I would be getting better at the hospital while you had fun with Natalie and the rest of the family at her baby shower. You told me as I kissed you goodbye... "I love you mommy... You will get better!" <tear> I sure hope so Gavin... I really do!
This just sucks... It really flipping sucks.... I want to be with my family... not alone here in another hospital bed!! SO FRUSTRATED and worried.
5 days later... I'm still in the hospital... I'm starting to get to know the staff here. I'm also scheduled for surgery to correct the fistula that was created after a heart catherization in 2004. This fistula apparently is connecting a major vein and artery and possibly could create my heart to weaken.... Hopefully this correction is the answer to all my symptoms.... I'm relieved to finally have some direction to a problem....
After my surgery the surgeon told me that the fistula was the biggest she had ever seen. She said it was shunting approximately 30% of my blood the wrong direction and would most definatly cause my heart and lungs to weaken. They are hopeful that this was the answer to fix all the other symptoms!!
I am hopeful!!
One last note... Through all of this I was angry with God... who wouldn't be... why do I, a 27 year old women with a beautiful 3 year old and so much ahead in this life have so many health issues and may never see her child graduate highschool, college, get married and have children? How is it fair? Yes, I was angry... and but not doubtful that the Lord would come to my rescue.... He will eventually (wheather here or in Heaven) heal my body... And I will dance before the Lord's thone one day. Never have I doubted his great power... Never will I doubt that he is God or that he exists. I have been angry.... I think it is totally biblical to be angry....but it is never right to sin....curse God.... or say that there is no God because if there was why is this happening? I never doubt his goodness because He has always been there for me. And honestly..... He is the reason why I made it to this age and he is the reason I am your mommy! He is the reason I live..... ALWAYS! He gives me breath....every single heartbeat... and every day I deal with a health issue is one more day in my testamony... I hope I can share God's presence in my life with others in simular situations!
Please, no matter what... don't deny God his due faithfulness. If I am not here to see you graduate highschool, or college, or see you get married. Please do not turn your face from the Lord. I know you may not understand His ways...and it's totally okay to be angry with him sometimes. But Gavin, PLEASE do not turn away from him... He will guide you through this life... He is the best one to do so!! Please know I WILL see you in heaven as long as you believe Jesus is Lord and live for Him because you love him and give him your life.
I love you my son.... I hope you know that!
<3 momma <3
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| At one point I had 2 IV's and 1 A-line in me.... I was so sick of being poked and taped! |
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| I got really bored in the hospital and decorated the glass of the other patient's doors.. |
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| Wicked bruise after surgery! |